ACUTE PORPHIRIA – A RARE GENETIC DISEASE , in which the synthesis of heme, a part of the hemoglobin molecule, is disrupted. In the body of patients accumulate toxic substances that kill the nervous system. The attacks are accompanied by
“Nobody knows what to do with me”: How I live with acute porphyria
ACUTE PORPHIRIA – A RARE GENETIC DISEASE , in which the synthesis of heme, a part of the hemoglobin molecule, is disrupted. In the body of patients accumulate toxic substances that kill the nervous system. The attacks are accompanied by